Tuesday, August 14, 2012

The Bonus Days

"When the heart grieves over what is has lost, the spirit rejoices over what it has left.


8 years ago I endured the worst 24 hours of my life....

8 years ago, Brian was taken into emergency surgery.....

From the same hospital bed he had spent the last week.....

From the moment he was admitted to the hospital for a low blood count.....

To the moment he returned from "exploratory surgery" which identified cancer throughout his body....

The same hospital bed he shared with our 9 and 6 year old boys that he had cancer....

The same hospital bed that he watched the 2004 Summer Olympics and the swimming competition with Jay and Nolan sitting beside him.....

The same hospital bed that we discussed insurance coverage and that he panicked about who the beneficiary was on the life insurance policy his grandmother had the foresight to purchase for him as a college graduation gift.

Less than an hour earlier, I had called one of his closest friends from college to share the news that Brian was in the hospital and was diagnosed with cancer.....

Less than an hour earlier I had shared with his friend that we were heading to Houston for treatment options.....

Less than an hour earlier, I was making breakfast for our children.

As I rushed to the hospital after Brian's call and urgent voice that something was drastically wrong, I remember seeing all the kids moving in at Illinois Wesleyan College and being angry....

Angry that their lives were still going on.....


Angry that no one else was going through what we were going through.....

Angry that there was so much uncertainty in our lives.

I met my mother-in-law in the waiting area and we headed down to the chapel.  We were not there 5 minutes when we were paged.

10 minutes after I walked into the hospital....30 minutes after Brian was taken into surgery.

This could not be good.

And it was worse than "this could not be good."

The surgeon - fighting through tears of his own - shared that there were complications from his previous surgery.

Looking back I should have recognized that surgeons do not cry....

Looking back I should have known that the news was terrible....

Looking back I feel bad that I was so clueless and made the surgeon repeat himself....

Over and over.....

And finally he had to be direct and blunt....

There was nothing they could do.

What?  What?  I don't understand....

Nothing you can do?

Nothing we can do.....Brian has 24 to 48 hours to live.

And then we just sat...Brian's mother and I.....

We just sat.....

We didn't know what to do....

Suddenly Brian's brother appeared....

I called one of my friends and left a frantic message to go to my house to relieve my sister-in-law....she needed to be there to console my brother and mother-in-law.

I had to make phones calls....to Brian's father....to my family....

And finally we got to see Brian.

He of course had no recollection what the surgeon had shared with him.....so I had to repeat it.

And just like me, he asked me to repeat it again.

And in true attorney fashion, he asked to speak to his surgeon (his wife couldn't have gotten this correct)....

And in true attorney fashion, he insisted they interrupt a surgery so he could speak to the surgeon....

And in true Brian fashion, he insisted that if he was going to die in 24 hours, he wanted a room with a view and a Coke.

And in true Brian fashion, he got what he wanted.....

And he made his mother and I laugh....

Because when they brought him his "Coke", he promptly announced, "This is a Pepsi.  I am dying....I want a COKE."  

And the nurses scrambled to put together their change and bought him a Coke from the machine.

Long story, I know.  But that 24 hours kept getting extended.....Brian didn't pass away for another week.  We had 5 bonus days together.

During that time, his unsuspecting fraternity brother called his room....thinking Brian was just recovering and getting ready for his trip to Houston.  He had no idea Brian was just given a death sentence.

And as the day passed, more fraternity brothers called from all across the country.  The phone never stopped ringing.

Two brothers flew to middle of the nowhere Illinois to visit him

And we reminisced and laughed after every phone call.....

And we shared memories with one another.....

And I slept each night on a cot next to his bed....

And he held my hand tightly each night.....all night.

Yes, it was the worst 24 hours of my life.....to be told that the one you love is going to die within the next few hours....

But, it was some of the most wonderful 5 days afterwards.....sharing with one another....sharing with each other how much we loved one another.....sharing all our deepest thoughts and feelings....and each minute being a "bonus."

Please, please, please....do NOT wait until the last 24 hours to take advantage of "bonus" days.  Think of each and every day you wake up next to the one you love as a "bonus" day.  Share with them how much you care for them....respect them.....give them the best of you!

If not for you and your loved one....than do it for what Brian and I am missing each and every day....and for the intense loneliness that surrounds my every moment.

Monday, August 6, 2012

Living in Slow Motion ....Again

Today is the day.....

The day cancer infected the lives of my children.....

The day their worlds were never the same....

The day their childhood innocence was stolen from them....

The day they realized their parents were not made of superhero material.....

The day they became different from all their friends....

The day they had to start providing explanations to their father's whereabouts....

The day our lives started moving in slow motion.

I wrote about this last year - and I need to write about it again this year but from the perspective of my children. (See The Day My World Began Moving in Slow Motion)

August 6, 2004 - at about this time - 6 pm-ish.....the boys and I were playing with Rachel (just shy of her first birthday) and cheering her on as she took her first steps.

I recall the boys excitement and we couldn't wait for Brian to come home from work so we could share this milestone with him.

We waited....

and waited....

and waited.

Suddenly, the phone rang.  The boys were getting somewhat distracted as a 6 and 9 year old tend to do....but as soon as they recognized that I was on the phone with their father, they became quite interested again.

But, I'm sure they could sense something wasn't quite right......just as I sensed something wasn't quite right as soon as I heard Brian's voice.

I will never forget that feeling when I heard Brian's voice....the concern, the nervousness, the unknown.  For those of you that knew Brian, you know that he was never nervous....never scared.  He may have had the ability to worry for no reason about things but he was always in charge; always in control.    This was not the Brian I had weathered ups and downs with.  Something wasn't right.

And at that moment, the world around me slowed down.....for all of us.....

And I'm sure if my children could remember all the details at the time, they could see the change in my voice and my demeanor.

Brian was admitted to the hospital at 6 pm-ish on August 6, 2004.

And he would never step out of the hospital again.

Cancer had entered our lives - and would take his life within a short 2 week span.  A time period that was filled with unknown, despair, some laughter but mostly sadness.

And the most difficult part of it all?

Sure, it was difficult for him and I to grasp the idea that our "to death do you part" was coming much sooner than we had ever anticipated.

No, the most difficult part was looking into the eyes of our children and explaining to them what was happening.  Our older one understood immediately and ran off full of anger and grief.

Our younger son didn't understand.....didn't really grasp what we were sharing with him.

A few days prior to Brian's passing, Nolan and I were walking through the hospital and he looked up at me.  "Mom, Dad is never coming home again, is he."  What a awful statement for a 6 year old to have to think about, let alone have to speak.

Brian never had the opportunity to witness his beautiful daughter take a step....he was never able to hold her again.

Damn cancer.  

This is why I run/ride ridiculous events while juggling a full-time job and raising three children alone.  This is why I ask all of you to support my efforts for LIVESTRONG.  This is why I get up at crazy hours to squeeze in a ride or run.  To KICK CANCER'S ASS!

August is always a reminder to me of how much I hate cancer - don't we all?  Don't we all have stories of how cancer has impacted our lives?

The next two weeks are much easier each year but still go in slow motion for me at times as memories come flowing back.  Thankfully it is easier - and thankfully I am able to "celebrate" life the day after Brian's passing with Rachel's birthday.

I know many of you think I may be crazy (and yes, I think so as well quite often) but it is my goal to make sure other kids and parents don't have to have an August moment like the Simmons family did.

Thank you for your emotional support.....and your financial support to my fundraising efforts all these years!

If you'd like to help LIVESTRONG help other's survive cancer with FREE services, please consider making a donation at Barbara's Chicago Marathon Fundraising page to Benefit LIVESTRONG

Friday, August 3, 2012

Five for Five on the Fifith

Sunday is August 5th.

Just another day of summer...right? 

Not in my world.  Each of the 15 days proceeding August 5th is significant to me.

Eight years ago, August 5th was the LAST day cancer was not part of our daily world.   August 6th was the day my husband and childrens' father, Brian,  was admitted to the hospital and our cancer journey began.

August 5th was still filled with hope of a lifetime together.  I would do anything to have 5 minutes back with Brian....and my sister....and my mother....and my father.

So, in honor of this hope and the chance others can have a lifetime of memories with their  their loved ones,  hope, I am asking you to join me in donating $5 to LIVESTRONG - $5 for 5 minutes on the 5th.


I've done the cycling across Iowa and I'll do the running across Oregon at Hood to Coast and through the streets of Chicago during the Chicago Marathon.  All I ask, is that you part with $5.00 - one Starbucks Grande Latte or one IP Brew or one Chipotle Burrito.


Can we get 50 $5.00 donations on the 5th for 5 more minutes??  Use the link below. 


Thanks so much!


5/5/5 Donations to Support LIVESTRONG